National organizations join forces to publish new resource on COVID-19 and Down syndrome


The Resource is based on the publication of Q&A on COVID-19 and Down Syndrome and focuses on new and updated information specific to testing, vaccines, mental health, ways to stay safe and advocacy in hospital settings and for appropriate care. It is available in English and Spanish.

“It is important and useful to have advice on how to help people with Down syndrome prepare for the vaccine, especially if they have an aversion to needles,” says Debbie shadrix, Georgia mom to Bradley Carlisle, a self-advocate who has just received his second dose. “I also think everyone should read the sections on mental health and safety!”

In December 2020, the Center for Disease Control and Prevention (“CDC”) officially added Down syndrome to the list of medical conditions considered “at high risk” for serious illness or death from COVID-19. The move was made after studies found that adults with Down syndrome, especially those aged 40 and over, are 4 to 5 times more likely to be hospitalized and 10 times more likely to die from complications. associated with COVID-19.

The addition of Down syndrome to the CDC’s list of high-risk diseases has had implications for vaccine prioritization and distribution, another topic that is discussed in detail in the new. COVID-19 and Down’s syndrome resource.

“This resource is very helpful in explaining vaccines and when the CDC recommends people with Down syndrome get it,” says Dolores Zarate, founder of Down By The Border at Texas and mother of Zariah, who has Down syndrome. “It also makes it clear that governors and states will ultimately decide who gets it when, and we will continue to advocate for people with disabilities to come first.”

This resource is for informational purposes only and is not intended to provide medical or related advice. This resource should NOT be viewed as a substitute for advice from healthcare professionals or other professionals. Consult your doctor or other healthcare professional for medical advice.

The following national and international organizations support the COVID-19 & Down Syndrome Resource: Down Syndrome Affiliates in Action, Exceptional Parenting Magazine, GiGi’s Playhouse, International Mosaic Down Syndrome Association, Jerome Lejeune Foundation, Matthew Foundation, T21 Research Society and Down Syndrome Association of Ontario.

This resource is protected by copyright and may not be reproduced on any website or modified without infringement of intellectual property. However, families, friends and professionals are encouraged to visit any of the consortium member websites hyperlinked below to download a PDF or share the PDF by email, text or on the web. social networks.

About the National Consortium

Down Syndrome Medical Interest GroupUnited States (DSMIG-United States)
DSMIG-USA is a group of healthcare professionals committed to promoting the optimal health care and well-being of people with Down syndrome throughout their lives.

Global Down Syndrome Foundation (GLOBAL)
The Global Down Syndrome Foundation is the largest non-profit organization in the United States working to save lives and dramatically improve health outcomes for people with Down syndrome.

LuMind IDSC Foundation (LuMind IDSC)
The LuMind IDSC Foundation is a non-profit organization that accelerates Down syndrome research to increase the availability of therapeutic, diagnostic and medical care options and empowers families through education, connections and support.

National Down Syndrome Congress (NDSC)
The National Down Syndrome Congress is a non-profit organization dedicated to a better world for people with Down syndrome.

National Down Syndrome Society (NDSS)
The mission of the National Down Syndrome Society is to be the premier human rights organization for all people with Down syndrome.

National Working Group on Intellectual Disabilities and Dementia Practices (NTG)
The NTG’s mission is to advocate for services and supports for people with intellectual disabilities and their families who are affected by Alzheimer’s disease and dementias.

SOURCE World Down Syndrome Foundation

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