GLOBAL Applauds House Appropriations Subcommittee for Approving $ 15 Million Increase for NIH INCLUDE Initiative and Related Down Syndrome Research for Fiscal Year 2022 Budget
DENVER, July 13, 2021 / PRNewswire / – Today, the House Appropriations Subcommittee for Labor, Health and Human Services, Education and Related Agencies (Labor-HHS) approved its funding bill for fiscal year 2022, which includes a $ 15 million increased funding for the National Institutes of Health’s Investigating Co-Occurring Conditions Across the Lifespan to Understanding Down Syndrome (INCLUDE) initiative and related Down syndrome research.
Global Down Syndrome Foundation (GLOBAL) and our national network of community advocates successfully advocated for the establishment of a trans-NIH Down Syndrome research initiative in the Fiscal 2018 Budget and secured funding increases for the initiative each year since its inception.
GLOBAL is deeply grateful for the support and leadership of the Chair of the House Appropriations Committee Rosa DeLauro (D-CT), ranking member of the Labor-HHS subcommittee Tom cole (R-OK), Rep. Lucille Roybal Allard (D-CA), Rep. Jaime Herrera Beutler (R-WA), Rep. Cheri Bustos (D-IL) and all the committee members who supported this year’s increase. The full House appropriations committee plans to vote on funding legislation this Thursday July 15the, and it is expected to be considered by the House of Representatives by the end of July.
GLOBAL has led a multi-year international advocacy campaign to raise awareness among policymakers about the unprecedented scientific opportunities linked to the presence of three copies of chromosome 21 (instead of two), which causes Down syndrome. This leads to a drastically different spectrum of illnesses for people with Down syndrome, as these people are predisposed or protected against the major illnesses that kill more than 50% of Americans.
Thanks to leadership from GLOBAL, a bipartisan, bicameral congressional group included language in the Fiscal Year 2018 spending bill that called on the National Institutes of Health to launch a trans-NIH program led by the office of the director of NIH to harness the power of multiple institutes. to expand the science around Down syndrome and related conditions like cancer, diabetes and Alzheimer’s disease.
The INCLUDE initiative has been a resounding success, managed by the NIH Director’s office with the support of the NIH Drs Champions. Francis collins, Laurent Tabak, Diana bianchi, Gary Gibbons, and other directors of institutes such as Dr. Richard Hodes. The initiative has led to a breakthrough and significant advancements in our understanding of immune system deregulation, new studies focusing on the increased prevalence of Alzheimer’s disease in people with Down syndrome, and the creation of a National Down Syndrome Data Coordination Center, which will dramatically improve the health and quality of life of people with Down’s Syndrome as well as millions of people without Down Syndrome. Increased funding will help researchers pursue some of the most neglected areas of research and care, such as health disparities for African Americans with Down syndrome, mosaic Down syndrome, those with the disease. dual diagnosis of Down syndrome and autism, and new studies of metabolic research deregulation.
About the World Down Syndrome Foundation
The Global Down Syndrome Foundation (GLOBAL) is the largest nonprofit organization in the United States working to save lives and dramatically improve health outcomes for people with Down syndrome. GLOBAL has donated more than $ 32 million to establish the premier Down syndrome research institute supporting more than 400 scientists and more than 2,000 Down syndrome patients in 28 states and 10 countries. Working closely with Congress and the National Institutes of Health, GLOBAL is the leading advocacy organization in the United States for Down syndrome research and medical care. GLOBAL is a member of over 130 organizations with Down Syndrome worldwide and is part of a network of affiliates – the Crnic Institute for Down Syndrome, the Sie Center for Down Syndrome and the University of Colorado Center for Alzheimer’s Disease and Cognition – all on the Anschutz medical campus.
GLOBAL’s widely distributed medical publications include Global Guidelines for Medical Care for Adults with Down’s Syndrome, Prenatal Tests and Information on Down Syndrome, and the award-winning Down syndrome worldMT magazine. GLOBAL also organizes the annual fair Acceptability Gala, and the Be beautiful Be yourself Fashion show, the largest fundraiser for Down’s syndrome in the world. Visit globaldownsyndrome.org and follow us on social media (Facebook & Twitter: @GDSFoundation, Instagram: @globaldownsyndrome).
Contact: Anca Elena Appel, [email protected], C: (720) 320-3832
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SOURCE World Down Syndrome Foundation